Miabelle Gillier is one of the sweetest one-year-olds in the world. She was recently diagnosed with Hemophagocytic Lymphohistiocytosis (HLH), a rare disorder which causes malfunctioning of the hystiocyte, one of the primary cells to fight infections. She needs a bone marrow transplant to survive. You can help by ordering a bone marrow type test kit to see if you are a match or donating funds to help us save this precious little girl’s life.
Wednesday, August 31, 2011
Day 58: Keep on swimming...swimming, swimming... keep on swimming
Besides a little scare on Saturday, our little princess keeps on swimming...swimming, swimming... keeps on swimming...
Saturday day was a little scary and Saturday night Miabelle played a joke on us we will not forget any time soon. As I have mentioned before Miabelle has two lines going directly into her chest to administer medication. These lines are closely positioned to her heart so medication is directly, efficiently and fast absorbed in the blood.
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Bone Marrow Drive Every Tuesday and Thursday
Time: 10AM - 1PM
Location: Columbian Consulate, 10 East 46th street, NY NY,
No appointment necessary
Organiser: Nancy Garcia 888-638-2870
Bone Marrow Drive Every Wednesday and Friday
Time: 10AM - 1.30PM
Location: Dominican Consulate, 1501 Broadway Avenue, Suite 410, NY, NY
No appointment necessary
Organiser: Nancy Garcia 888-638-2870
